ASCO and ASCO members work hand-in-hand with patient advocates
to address a wide array of issues affecting people with cancer,
including the advancement of cancer research, legislative and
regulatory matters related to cancer care and research, improving
the quality of cancer care, raising public awareness of the
disease, and providing support to those living with cancer. Whether
advocates are operating from an individual or organizational level,
locally or nationally, ASCO supports their efforts and offers
opportunities and resources to promote all types of advocacy for
people with cancer. Independent of their particular focus, patient
advocates share a common goal with ASCO: addressing the needs and
concerns of people with cancer and ultimately accelerating progress
against cancer.
ASCO Programs for Patient Advocates
ASCO's
mission has always centered on improving the treatment and care of
people living with cancer. This mission includes serving not only
the educational needs of the professional oncology community, but
also the educational needs of the patient and survivor communities
as well. As such, ASCO provides the opportunity for advocates to
attend the ASCO Annual Meeting and ASCO Symposia to gain the
education, knowledge, and skills necessary to participate in the
cancer research process. ASCO meetings also enable advocacy
organizations to promote their programs, services, and resources to
the professional oncology community. As an added benefit, ASCO
meetings are great places for advocates to network with one another
as well as with oncology professionals.
ASCO's Annual Meeting Patient Advocate Programs have developed
significantly over the past 7 years to reflect the Society's
commitment to working with the advocacy community. Approximately
350 patient advocates attended the 2010 ASCO Annual Meeting,
representing well over 100 patient advocacy organizations. Twenty
organizations exhibited in the ASCO-sponsored Patient Advocacy
Booth, prominently situated at the front of the Oncology
Professionals Hall. Established in 1992, this booth allows
organizations to promote their mission and programs to meeting
attendees. In addition, about 30 other patient advocacy
organizations exhibit at each ASCO Annual Meeting.
Beyond exhibit opportunities, programs offered for advocates at
ASCO's Annual Meeting include:
- A teleconference for patient advocates that takes place in
mid-May, highlighting studies that will be presented at the meeting
and answering advocates' questions related to the research
- Discounted registration rate
- Discounted subscription to ASCO's Virtual Meeting and
Podcast
- Research Review Sessions, during which ASCO members review
disease-specific topics presented at the meeting, explain how the
research is relevant to patients, and answer questions
- Patient advocate scholarships, made possible by The ASCO Cancer
Foundation
- A lounge for patient advocates
ASCO Resources for Patient Advocates
One of ASCO's shared goals with the patient advocacy community
is to increase the accessibility of accurate and current
information to people living with cancer.
ASCO's doctor-approved patient information website, Cancer.Net,
includes a section dedicated to Advocacy and Policy. Here, visitors
can learn about ASCO's programs for patient advocates, read about
what it means to be a cancer advocate, find information about
current policy issues, and learn how to effectively communicate
with elected officials.
A comprehensive section lists Cancer-Specific
Resources-national, not-for-profit organizations that provide
additional information, services, and support. The Cancer News and
Meetings section includes easy-to-read summaries that put top
scientific news from ASCO meetings into context for patients.
Videos and podcasts with national and international cancer experts
are included as well, breaking down the science into specific
disease areas and explaining what the studies mean for people with
cancer.
These and other resources are freely available on Cancer.Net.
Additional information about ASCO's patient advocate programs can
be obtained by contacting patientadvocates@asco.org. ■
© 2010. American Society of Clinical Oncology. All Rights
Reserved.