Medicare reimbursement. Medical liability reform. Stem cell
research. Insurance coverage for investigative drugs. These are but
a few examples of the hundreds of areas in which legislation and
regulations affect medical practice and patient care.
Marilyn Heine,
MD, a member of Regional Hematology Oncology Associates in
Langhorne, Pennsylvania, thinks that physicians can make a
difference in public policy and have a responsibility to do so. "I
firmly believe that just as we advocate for our patients in the
clinical arena, it's imperative that we advocate for them in the
legislative arena," she said.
Dr. Heine practices what she preaches. She is the coordinator of
a physician advisory group that communicates regularly with their
congressman, Patrick Murphy. She organized the group years ago at
the request of a member of the U.S. House of Representatives on
whose campaign she had worked. His successors were aware of this
resource and have continued to use it.
Education, Rapport Important
Legislators want help in understanding the implications of
health-care policies, according to Dr. Heine.
"The essential thing in advocacy is education. Just as we educate
our patients about the best treatment for them, we can educate our
policymakers on what would be the best position for them to take to
benefit their constituency. The vignettes we provide about our
patients and how issues affect them put a face on these
issues."
An occasional message to legislators is not as effective as
developing an ongoing relationship, Dr. Heine noted. She suggests
getting to know lawmakers' senior staff in their home office as
well as their legislative aides in Washington. One activity that
she found very productive was hosting a tour of her oncology
practice.
"We described the activities in the different areas where we
provide care and the many support services provided daily, most of
which are uncompensated," Dr. Heine reported. She commented that
this exposure to a real practice with real patients helped
illustrate how Medicare payments are already falling short of the
cost of care of oncology patients.
Tips and Tools for Political Advocacy
Dr. Heine has several suggestions for oncologists interested in
developing a dialog with members of Congress. One is to engage in
the legislator's campaign. "Volunteer, contribute, and encourage
others to support the candidate. If you are interested, host a
fundraiser or a 'meet and greet,'" she said.
To arrange a meeting or to host the legislator at your practice,
call the legislator's scheduler. Dr. Heine cautioned that you have
to be determined-it often takes more than one call. But, she noted,
perseverance pays off.
"I have seen positive results, such as a member of Congress
modifying his position and becoming a champion of a bill," she
said. "Last year, Representative Patrick Murphy sent a 'Dear
Colleague' letter to other members of the House, urging passage of
the bill to reform the Medicare sustainable growth rate payment
system for physicians. In another instance, I was fortunate in
securing a congressionally authorized research grant."
Dr. Heine also encouraged using ASCO resources. She has found
the ASCO staff and online tools to be extremely helpful in her
advocacy efforts.
"ASCO provides updates on issues and excellent talking points
that help you formulate an agenda," she noted. For oncologists
interested in becoming a public policy advocate she suggested
joining ASCO's Advocacy Network at http://capwiz.com/asco/home.
Finally, Dr. Heine noted that promoting public and patient
awareness of issues can help move the policy agenda. She writes
letters to the editor of both the local paper and the Philadelphia
Inquirer, and her office has information available in the waiting
room for patients interested in advocating access to care and other
issues.
Dr. Heine said, "As physicians, we have a unique role in
advancing the advocacy agenda for cancer care issues." ■
© 2010. American Society of Clinical Oncology. All Rights
Reserved.