NCCN Publishes New Patient Education Resources About Myelodysplastic Syndromes


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To provide insight on myelodysplastic syndromes (MDS) for patients and caregivers, the National Comprehensive Cancer Network® (NCCN®) has published the NCCN Guidelines for Patients® and NCCN Quick Guide™ for MDS. These resources are provided through funding from the NCCN Foundation® and, in part, through sponsorship from the Aplastic Anemia and MDS International Foundation (AAMDSIF).

“NCCN Foundation thanks the Aplastic Anemia and MDS International Foundation for their generous sponsorship of the NCCN Guidelines for Patients: MDS,” said Marcie R. Reeder, MPH, Executive Director, NCCN Foundation. “Access to these new, easy-to-understand resources empowers patients to ask important questions and make well-informed decisions about their cancer care.”

“We are grateful for the opportunity to partner with NCCN to develop this valuable patient resource,” said Kathleen Weis, CEO of ­AAMDSIF. “Education has always been a key component of our mission, and we are proud to have contributed to the creation of these important guidelines for MDS patients and their families.”

Patient-Friendly Guides

NCCN Guidelines for Patients, patient-friendly translations of the NCCN Clinical Practice Guidelines in Oncology (NCCN Guidelines®), are easy-to-understand resources based on the same clinical practice guidelines used by health-care professionals around the world to determine the best way to treat a patient with cancer. Each resource features unbiased expert guidance from the nation’s leading cancer centers designed to help people living with cancer talk with their physicians about the best treatment options for their disease. These resources are available free of charge at NCCN.org/patientguidelines. Print versions are available to order on Amazon.com.

NCCN Guidelines for Patients and NCCN Quick Guide sheets—one-page summaries of key points in the patient guidelines—are written in plain language and include patient-friendly elements, such as questions to ask your doctor; a glossary of terms; and medical illustrations of anatomy, tests, and treatments.

NCCN currently offers NCCN Guidelines for Patients for the following: breast, colon, esophageal, kidney, non–small cell lung, ovarian, pancreatic, and prostate cancers; acute lymphocytic leukemia; caring for adolescents and young adults; chronic lymphocytic leukemia; chronic myelogenous leukemia; Hodgkin lymphoma; non-Hodgkin lymphomas; lung cancer screening; malignant pleural mesothelioma; melanoma; multiple myeloma; and soft-tissue sarcoma; and now, ­myelodysplastic syndromes.

To download the NCCN Guidelines for Patients and NCCN Quick Guide™ for MDS, visit NCCN.org/patientguidelines. ■



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